{"created":"2023-06-19T10:05:20.457709+00:00","id":14770,"links":{},"metadata":{"_buckets":{"deposit":"a3dedb14-0586-484f-94e2-f55b5c233c2e"},"_deposit":{"created_by":23,"id":"14770","owners":[23],"pid":{"revision_id":0,"type":"depid","value":"14770"},"status":"published"},"_oai":{"id":"oai:kwmw.repo.nii.ac.jp:00014770","sets":["7:330:331"]},"author_link":["64815","64816","64817","64818"],"control_number":"14770","item_1_alternative_title_20":{"attribute_name":"その他(別言語等)のタイトル","attribute_value_mlt":[{"subitem_alternative_title":"Mother’s Suffering and Hope for Support in Telling Their Illness to Children with Cleft Lip and/or Plate","subitem_alternative_title_language":"en"}]},"item_1_biblio_info_14":{"attribute_name":"書誌情報","attribute_value_mlt":[{"bibliographicIssueDates":{"bibliographicIssueDate":"2020","bibliographicIssueDateType":"Issued"},"bibliographicIssueNumber":"1-1","bibliographicPageEnd":"137","bibliographicPageStart":"129","bibliographicVolumeNumber":"30","bibliographic_titles":[{"bibliographic_title":"川崎医療福祉学会誌"}]}]},"item_1_creator_6":{"attribute_name":"著者名(日)","attribute_type":"creator","attribute_value_mlt":[{"creatorNames":[{"creatorName":"高尾, 佳代","creatorNameLang":"ja"}],"nameIdentifiers":[{"nameIdentifier":"64815","nameIdentifierScheme":"WEKO"}]},{"creatorNames":[{"creatorName":"中新, 美保子","creatorNameLang":"ja"}],"nameIdentifiers":[{"nameIdentifier":"64816","nameIdentifierScheme":"WEKO"}]}]},"item_1_description_1":{"attribute_name":"ページ属性","attribute_value_mlt":[{"subitem_description":"P(論文)","subitem_description_type":"Other"}]},"item_1_description_2":{"attribute_name":"記事種別(日)","attribute_value_mlt":[{"subitem_description":"原著","subitem_description_type":"Other"}]},"item_1_full_name_7":{"attribute_name":"著者別名","attribute_value_mlt":[{"nameIdentifiers":[{"nameIdentifier":"64817","nameIdentifierScheme":"WEKO"}],"names":[{"name":"TAKAO, Kayo"}]},{"nameIdentifiers":[{"nameIdentifier":"64818","nameIdentifierScheme":"WEKO"}],"names":[{"name":"NAKANII, Mihoko"}]}]},"item_1_identifier_registration":{"attribute_name":"ID登録","attribute_value_mlt":[{"subitem_identifier_reg_text":"10.15112/00014705","subitem_identifier_reg_type":"JaLC"}]},"item_1_publisher_23":{"attribute_name":"公開者","attribute_value_mlt":[{"subitem_publisher":"川崎医療福祉学会"}]},"item_1_source_id_13":{"attribute_name":"雑誌書誌ID","attribute_value_mlt":[{"subitem_source_identifier":"AN10375470","subitem_source_identifier_type":"NCID"}]},"item_1_source_id_19":{"attribute_name":"ISSN","attribute_value_mlt":[{"subitem_source_identifier":"0917-4605","subitem_source_identifier_type":"PISSN"}]},"item_1_text_22":{"attribute_name":"その他(別言語)の雑誌名","attribute_value_mlt":[{"subitem_text_value":"Kawasaki medical welfare journal"}]},"item_1_text_9":{"attribute_name":"著者所属(日)","attribute_value_mlt":[{"subitem_text_value":"川崎医科大学附属病院看護部・川崎医療福祉大学大学院医療福祉学研究科保健看護学専攻博士後期課程"},{"subitem_text_value":"川崎医療福祉大学保健看護学部保健看護学科"}]},"item_1_textarea_11":{"attribute_name":"抄録(日)","attribute_value_mlt":[{"subitem_textarea_value":"口唇裂・口蓋裂の子どもに病気を伝える時の母親の苦悩と支援の希望を明らかにすることを目的に， 11名の母親を対象に半構成面接を行い質的帰納的に分析した．結果，母親は【子どもの否定的な反応が脳裏に浮かぶ】【病気を伝える方法，時期，きっかけに苦慮した】【子どもへ病気を伝えるための心の準備ができない】【伝える必要性の判断の狭間で悩んだ】【いじめに対応できる説明に苦慮した】を苦悩としていた．支援の希望として，【子どもへ病気を伝えるための情報の提示】【医療者から子どもへの病気説明】【親同士の交流の場の設定】【看護相談窓口の設置】【遺伝についての相談窓口の紹介】が抽出された．医療者は，これら母親の声を活かした支援策の提案が喫緊の課題である．"}]},"item_1_textarea_12":{"attribute_name":"抄録(英)","attribute_value_mlt":[{"subitem_textarea_language":"en","subitem_textarea_value":"We had an interview with mothers who have children suffering from the diseases of cleft lip and/or plate for the purpose of using it for planning future assistance measures by hearing their suffering and hope for support when they convey the disease to their children and analyzed it. As results, we found that the mothers are worried about five problems. Mothers were troubled about [imaging the children’s negative reaction] [not knowing how and when to tell the children about their disease] [mental preparation in telling the children their disease] [whether or not it is necessary to tell it] and [considering the explanation which can deal with bullying]. Also, the support mothers are hoping for is [the presentation of the information to tell their children about their disease] [explanation about children from the medical staff] [places where they can communicate with others] [establishment of a nursing consultation desk] and [introduction of a consultation desk on genetics]. It is necessary for the medical staff to support the mothers by making use of this interview."}]},"item_files":{"attribute_name":"ファイル情報","attribute_type":"file","attribute_value_mlt":[{"accessrole":"open_date","date":[{"dateType":"Available","dateValue":"2020-12-11"}],"displaytype":"detail","filename":"13_高尾佳代.pdf","filesize":[{"value":"492.4 kB"}],"format":"application/pdf","licensetype":"license_note","mimetype":"application/pdf","url":{"label":"PDF","url":"https://kwmw.repo.nii.ac.jp/record/14770/files/13_高尾佳代.pdf"},"version_id":"772d2e97-f1a8-49a6-bf14-72da86fa10d8"}]},"item_keyword":{"attribute_name":"キーワード","attribute_value_mlt":[{"subitem_subject":"cleft lip and/or palate","subitem_subject_language":"en","subitem_subject_scheme":"Other"},{"subitem_subject":"mother","subitem_subject_language":"en","subitem_subject_scheme":"Other"},{"subitem_subject":"children","subitem_subject_language":"en","subitem_subject_scheme":"Other"},{"subitem_subject":"tell ones illness","subitem_subject_language":"en","subitem_subject_scheme":"Other"},{"subitem_subject":"hope for assistance","subitem_subject_language":"en","subitem_subject_scheme":"Other"}]},"item_language":{"attribute_name":"言語","attribute_value_mlt":[{"subitem_language":"jpn"}]},"item_resource_type":{"attribute_name":"資源タイプ","attribute_value_mlt":[{"resourcetype":"departmental bulletin paper","resourceuri":"http://purl.org/coar/resource_type/c_6501"}]},"item_title":"口唇裂・口蓋裂の子どもに病気を伝える時の母親の苦悩と支援の希望","item_titles":{"attribute_name":"タイトル","attribute_value_mlt":[{"subitem_title":"口唇裂・口蓋裂の子どもに病気を伝える時の母親の苦悩と支援の希望","subitem_title_language":"ja"}]},"item_type_id":"1","owner":"23","path":["331"],"pubdate":{"attribute_name":"PubDate","attribute_value":"2020-12-11"},"publish_date":"2020-12-11","publish_status":"0","recid":"14770","relation_version_is_last":true,"title":["口唇裂・口蓋裂の子どもに病気を伝える時の母親の苦悩と支援の希望"],"weko_creator_id":"23","weko_shared_id":-1},"updated":"2024-02-22T01:45:24.887042+00:00"}